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hope for stroke survivors and their caregivers

Hope for Stroke

The Venting Closet/Room

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The Venting Closet/Room

A place to leave you anger, frustration, fear and worries. Hopefully others will have a recommendation or answer.

Website: http://www.hope4stroke.com
Members: 14
Latest Activity: Aug 27

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Don

Anger a useful healing tool 2 Replies

Started by Don. Last reply by Don Apr 27.

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Hope for Stroke Comment by Hope for Stroke on August 27, 2009 at 12:40pm
Hi Sharon, the gov't and hospitals appear to be run by insurance companies that dictate how long a person can stay and what extras they can have. Keep venting maybee they'll read it.
Sharon Wagoner Comment by Sharon Wagoner on August 27, 2009 at 10:37am
What I don't understand is that if I had given up on my husband, who had a massive stroke, and divorced him and let him go to a nursing home, where he would not have received aggressive physical therapy and therefore would still be as helpless as a baby instead of walking around, Medicaid would have soon been paying all his bills . It costs between $4,000 and $6,000 a month to keep a person in a nursing home. Since I did everything to help him recover, I am exhausted, overwhelmed with bills, and caring for him alone. Isn't this a counter productive way of doing things. I don't expect a free ride, but how about a small stipend while he was the most helpless to help keep him out of an expensive nursing home and help finding an at home internet job that is not a scam once he was a little better. By the way, I am a CNA. I can get $10 an hour for caring for someone else, but nothing for a 24/7 shift for over 2 years that saved the government and tax payers the aforesaid $4,000 to $6,000 a month. Does this make sense?
Don Comment by Don on August 14, 2009 at 5:20pm
To me its all done with smoke and mirrors and people get mad that health care is expensive? QUALITY costs, simple concept feebs cant wrap their brain around these days? I am against inflated costs and scams but to live right it does cost money and to earn it you have to work for it there is no such thing as a free lunch I learned long ago! There are ways to cut costs my friends youngest don who was wounded in Assistan last week is at home and only goes in to the military hospital once a day for a dressing change then when healed he will go from home to PT. Hospitals even under top flight conditions suk period
Dean Reinke Comment by Dean Reinke on August 14, 2009 at 3:50pm
My original doctor said it was a spontaneous dissection of my right carotid artery that then clotted and a clot let go. He was totally wrong, 2 years later I had an ultrasound done on my neck arteries and the cardiologist who looked at it said my right carotid artery was 100% closed which meant that at the time of the stroke it was probably 80% closed. The plaque in the artery peeled open, clotted and then let go. So for 2 years I was at a high risk for another stroke until the artery closed up. I fired the original doctor, he didn't know anything about stroke rehabilitation either.
Dean
Jeanette Wolfe Comment by Jeanette Wolfe on August 14, 2009 at 1:34pm
Do any of you actually know what caused you to have a stroke? They never did determine what caused mine.
Jeanette Wolfe Comment by Jeanette Wolfe on August 12, 2009 at 5:27pm
I was looking over the members list and couldnt help but notice many of you are from the New England area. I wonder if thats connected somehow?
Jeanette Wolfe Comment by Jeanette Wolfe on August 12, 2009 at 3:53pm
Shannon your right. And your story sounds alot like mine. I was 27 when I fell over at work and couldnt get up. In the hospital doctors told me Ide never walk, drive, work, ect. That really made me mad. I wasnt going to stay in a wheel chair either , or give up my whole life. I still have some paralysis but I manage ok, most the time. I still after 12 years feel mad about the whole thing.
Don Comment by Don on December 25, 2008 at 2:31pm
Trust me they dont make money when you are at home hanging out with your Dog? My Dog makes me feel much better than any of them.
Shannon Sayre Comment by Shannon Sayre on December 24, 2008 at 7:13pm
Well if I had listened to what the doctors said I would still be in bed, no being able to take care of myself, work, or drive. Anger kept me motivated to get my recovery done. Also the fact that I was only 27 at the time. There was no way I was going to spend the rest of my life in a wheelchair, NO Way!
Don Comment by Don on December 23, 2008 at 3:19pm
Anger is a useful thing the trick is to know who and what to use it on anger keeps me motivated for some reason as if I was comfortable with my situation I dont feel I would try as hard to get better? Doctors come and doctors go the thing I value above all in one is honesty? If you dont know just say so? Nothing sets me off worse than people who act at knowing what to do I have had to educate myself on what actually works or what may based on my feelings, if I had listened to these folks I would still be in bed with a feeding tube?
 

Members (14)

Don Ron Gardner susan Dean Reinke Hope for Stroke Jeanette Wolfe Sharon Wagoner Lauren Steinberg Debbie Rod Liesl Gretz jerry eckelberry Shannon Sayre Cindy K. Fischer
 
 

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