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Denise
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- Merchantville, NJ
- United States
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Denise's Discussions
Hemmorrhagic Stroke
14 Replies
Started this discussion. Last reply by Sharon Wagoner Sep 4.
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Kimberly & Lars,
You guys have been through a lot. Does anybody out there know of an article or something that has worked for them for thalamic pain? I suggest you two start a thread on this problem so it can get more attention. I found this site ...
We have tried many medications for thalamic pain. Right now she is taking cymbalta, oxycontin, gabapentin. Found a good research article that used ice water in the ear to interrupt the pain signals, did not work for us. Next is acupuncture. Keep y...
Lars,
My husband turns completely blue too. It scared me so much. It nearly destroyed me to have to hold him while he repeatedly almost suffocated. He was so frightened when the seizure was starting. All I could do is say, 'It's all right I've go...
Sharon,
The seizure lasted about 4-5 minutes. She stopped breathing, turned blue and went unconscious. This stopped the seizure and then Kim started breathing again.
For better or for worse. I try to find the better even in the worst. Today is our...
Denise,
Yes he had and has visual problems. At first, he could not move his eyes left at all. The doctors would not tell me if this would get better. Guess they were afraid of being sued. I found a reliable web site that said this usually improves...
Lars,
I am so glad you only had to go through that once. I would not wish it on the worst person in the world, little lone a loved one. How long did it last? Hope it was a short seizure. My husband had very long ones. I was obliged to give him bre...
Hi Sharon,
No we just had the one grand mal seizure. They had her on wellbutrin at the time which also supposedly lowers the seizure threshold. She is on Depakote now to stabilize her moods and it also prevents seizures.
Lars
Hi Sharon,
Tried e-mailing you but it was returned twice with a failure notice. You are to be commended also. All of your hard work seems to be helping your husband. Mark hasn't had a seizure. I hope he never has one. Mark also takes baclofen. I ...
Lars,
Has your wife had additional seizures or just the one. Is she on seizure medication? My husband had several seizures, we eventually found out, by looking on the internet, that the medication the doctors had prescribed for his muscle tremors ...
Denise,
My husband was also not expected to survive his stroke. I was told that it had damaged 70% of the right hemisphere of his brain. He was in ICU for 2 weeks and a rehabilitation center for 6 weeks. He was sent home because he was not making ...
My husband's stroke is a similar story. I have so much I want to say to you from my experiences over the last 27 months. I am trying to come up with a list of things that could help you.
So glad to hear the disability was approved. Do you still h...
Hi Sharon,
Thanks for responding. My husband had a large bleed I don't quite know exactly how much was damaged however, the resident on call that night when Mark arrived in the emergency room felt he was unsalvageable. The neuro surgeon felt diffe...
Denise,
How much of the right hemisphere of your husband's brain was damaged? What are his physical deficits? Is your husband still in physical therapy and what kinds of therapy is he doing? Have you applied for disability?
My husband had a massi...
Hi Denise,
My wife Kim suffered an ischemic stroke about 17 months ago. She was 48 and we have 2 children now 9 and 11. Initially she lost her speech and right side. Then later on had a seizure and developed thalamic pain syndrome which has been v...
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