stroke survivors and care givers haven

hope for stroke survivors and their caregivers

Sharon Wagoner
  • Female
  • Attica, KS
  • United States
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Sharon Wagoner added a discussion
We have found that playing the video game Tetris helped my husband overcome his difficulty in seeing things on his affected side after his stroke. He had to be reminded constantly to place the falling shapes on the neglected side at first, but he ...
September 21
People may not have heard the term, so start with a definition: Apraxia is a neurological disorder affecting the ability to control fine and gross motor movement and gestures. The disorder can also affect communication skills. Apraxia can range fr...
September 13
Dean, My husband was given baclofen for his spasticity. Not a good choice. It has the side effect of lowering the seizure threshold. He now takes gabapentin. I have found electro-stimulation, stretching exercises, and masage of tight muscles to b...
September 7
This seems to be the most complained about deficit by survivors. However researchers seem to think spasticity is useful. Spasticity After Stroke: Why Bother? http://stroke.ahajournals.org/cgi/content/full/35/8/1787. ‘The focus on spasticity in str...
September 7
Here is a pretty good article on muscle contraction and stiffness (tone or spasticity) due to stroke. http://www.healthline.com/hgy-transcripts/spasticity-doc-info
September 6
Good Idea!
September 4
Sharon, The only thing I can suggest is to get some muscle anatomy books to figure out what controls what. The one recommended to me by my OT was Anatomy of Movement by Blandine Calais-Germain. It helps me visualize what muscles are being used for...
September 4
Kimberly & Lars, You guys have been through a lot. Does anybody out there know of an article or something that has worked for them for thalamic pain? I suggest you two start a thread on this problem so it can get more attention. I found this site ...
September 3
Susan, Neuroplasticity (also referred to as brain plasticity, cortical plasticity or cortical re-mapping) is the changing of neurons, the organization of their networks, and their function via new experiences. In reference to a stroke it means ot...
September 3
what exactly is neurospasticity?
September 3
Sharon Wagoner added a discussion
When my husband had his massive stroke, there were so many decisions to make, and frankly I was too busy and too tired to make most of them, little lone able to take the time out to run around and meet with an accountant, and the many other specia...
September 3
Sharon, Thanks for the NOGO link, i had not seen that specific one.I may have to see a new physiatrist again and ask what is new in stroke rehab. I know neuroplasticity works, it is just a matter what exactly needs to be done to get it going. Of c...
August 31
Dean, I just watched a 2001 NOVA production Secrets of the Mind. The phantom sensation of stroking an amputated hand when the face is stroked shows that brain areas can be re-assigned. http://www.netflix.com/Movie/Secrets_of_the_Mind/70061002?tr...
August 29
Sharon Wagoner added 3 discussions
August 29
Hello, Susan, Thank you for your post. I have been repeatedly told that progress for my husband will taper off soon. At 27 months after the stroke, the doctor was so impressed by my husband's progress, particularly his ankle movement, that he was ...
August 29
Lars, My husband turns completely blue too. It scared me so much. It nearly destroyed me to have to hold him while he repeatedly almost suffocated. He was so frightened when the seizure was starting. All I could do is say, 'It's all right I've go...
August 29

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