hope for stroke survivors and their caregivers

All Blog Posts (41)

Post stroke equipment

Hello, I am a designer from London and am currently examining how design can provide solutions that humanise the difficulties associated with strokes, looking at the practicalities of post stroke equipment, and more importantly how it makes the user feel! I believe that with alot of current equipment is designed purely with physical and practical functionality in mind, neglecting how the user would respond emotionally when using it. If there are any particular aspects of post stoke life or exist… Continue

Added by Will H on October 15, 2009 at 11:30am — No Comments

YAY FOR MEEEEEEEEEEEE!!!!!!!!!!!!!!!!!

nj BETTER WATCH OUT, I'M BACK ON THE RD..... Continue

Added by susan barreca on July 31, 2009 at 5:22pm — No Comments

faith

i w as born and raised catholic made all my sacraments as did my children i'm all my children had, they lost their dad 10 yrs ago. i had to borrow money from my 19yr old son who just finished his first yr of college @kent state u in ohio. i just moved back to nj where i was born and raised.... i feel like i abanded him i also have 2 girls 13 and 16 i see my depression rubbing off on them now. i know my son needs to be a man i cry over himnot being here every day. my faith is gone i dont understa… Continue

Added by susan barreca on July 8, 2009 at 6:11pm — 3 Comments

ssd

how long did it take everyone to get their disability benefits. i'm going on 1 yr post stroke and havent received anything. i;m not even going to the dr anymore havent had my coumadin levels checked in months Continue

Added by susan barreca on July 5, 2009 at 6:25pm — 3 Comments

Multiple dimensions of Wealth

Multiple Dimensions of Wealth The Wealth of Positive Mental Attitude Perhaps American psychiatrist Dr. Karl Menninger summed it up best when he said “Attitudes are more important than facts.” A positive mental attitude can serve as the cornerstone of your success as well as provide a strong, healthy foundation for all that you do in life. The riches of a positive mental attitude can be beyond comprehension. I would not be able to make this claim if it were not for being stricken by a devastating… Continue

Added by Ron Gardner on July 1, 2009 at 5:20pm — No Comments

caregivers or not

do any of you know of a caregiver, who happens to be around age 33 or so, that has 2 small children, that's spouse has had a left hemo stoke that has paralysis and total espressive/ receptive language impairments along with apraxia? Anybody Continue

Added by Laurie on June 30, 2009 at 1:18pm — 2 Comments

Why wasnt it done 8 years ago!

This last Wednesday I spent 3 hours over being tested by a neuro psychologist, It was an eye opener, I felt good about everything except for the test where they have what looks like a cribbage board with little steel pegs that are shaped like an 8 on cross section so they only fit one way one direction I could do it fine with my right hand but my left hand was bad news? I couldnt even hardly get the pins? The initial prognosis from a PT was I had Apraxia, but this guy seems to think it is more a… Continue

Added by Don on June 27, 2009 at 2:34pm — No Comments

Dont be fooled

I am very concerned at this so called "NATIONAL" health care we have one of the best systems in the world and do not need FREE CLINICS with 3rd world witch doctors? What is needed is Tort reform an people to get jobs............... I am now disabled for life but because of my desire for benefits vice $$$ I will be covered the rest of my life unless they get rid of it? If they try to fool with my benefits they better stand by as I am not afraid of anything anymore! Continue

Added by Don on June 19, 2009 at 1:26pm — 2 Comments

Overwhelmed

Honestly I was thinking learning to walk was really hard. This was accomplished in a week, I was so happy to learn that again. Knowing how things could be for me, reading other stroke and CPS patients. But when people tell me that I feel guilty that I don't have some problems worse. Still can't let go of the stroke, is it due to my post stroke syndrome??? All this is overwhelming but I get pushed over the apex by being uninsured. Yea it's so bad having these issues of what to not pay to get meds… Continue

Added by Christopher Sprengel on May 30, 2009 at 3:22pm — 3 Comments

Overcoming Stroke One Step at a Time

I would like to share a video of me and my family which was recently aired on LIfetime Television's HealthCorner TV program. I hope it will be a source of inspiration and hope to others. I'm wishing everyone the best in health and wellness. Here is the link to the TV show for your convenience. Ron http://healthcorner.walgreens.com/display/2308.htm Continue

Added by Ron Gardner on May 26, 2009 at 4:56pm — No Comments

drivers license

has anyone got their drivers license back even if their left arm couldnt hit the turn signals? will they let you use your right hand for these things? Continue

Added by susan barreca on May 21, 2009 at 11:17am — 6 Comments

joel kevin lunning

Just joined your goup a little bit ago. MY EMAIL IS JKL71358@HOTMAIL.COM. I had a hemianopsyias stroke which effected my sight. I am doing well with the help of Dr. Ricarh windsor of the low vision center of Indiana. I just got new glasses in may 2009 and I am reading better every day. I drive , work out of the home. My life is better. It would be nice to hear from some other stroke survivors. Continue

Added by joel kevin lunning on May 20, 2009 at 12:19am — No Comments

Love and Gratitude for my wife and caregiver

I want to give my love and gratitude to my wife and caregiver Patti. We just celebrated our 28th wedding anniversary. We were high school sweethearts and including the dating years preceding our marriage, we have been together for 37 wonderful years. It is difficult at times for a person to be both a spouse and a caregiver. It is a fine line. I want to pay tribute to all caregivers out there I believe they deserve credit for a job well done. A life altering event can be hard on a family but with… Continue

Added by Ron Gardner on May 18, 2009 at 4:56pm — No Comments

Scared

Not only am I going through this stroke but, Im uninsured also. Saw my neuro today and hes sending me to a pain specialist. Thats what im upset with is hes been treating me for the whole time and now he deciedes to do send me there. This is so so overwhelming. Continue

Added by Christopher Sprengel on May 18, 2009 at 3:33pm — 4 Comments

What my stroke looks like

I just joined a research study on ankle movement at the University of Minnesota so I got a fMRI and saw this huge black spot where my stroke was. I never saw any of my original scans so this was a surprise, it looked like 1/3 of the right half of the brain was dark. This was both depressing and hopeful since I have made pretty good progress so far, showing that neuroplasticity is working for me but depressing because I have lots of ability to pack into whats left of my brain. I have to remember… Continue

Added by Dean Reinke on April 17, 2009 at 9:45am — No Comments

Discussing Stroke on XM/Sirius Radio

I wanted to let all my friends in the community know that I will be discussing stroke and stroke recoovery the week of April 6th on XM/Sirius Radio. The times and station information are below; The schedule for “This Is Audible” on both XM 163 & Sirius 117 simultaneously beginning the week of April 6 is: Mon. – 8am, Wed. – 7pm, Thu. – 3pm, Fri. – 11pm, Sat. – 8pm and Sun. – 8am, all eastern times. Continued good health and happiness. All the best, Ron Continue

Added by Ron Gardner on April 4, 2009 at 4:30pm — No Comments

Music helping the brain recover

I found that listening to music helped me after my SAH. Watching live videos took my mind back to times I could relate to. So I have made a showcase of some great performances. On brainhelp TV Go to - http://www.muzu.tv/player/undock?ni=27054&ai=28817&ci=132132&ep=0&ea=0 http://www.muzu.tv/ Is a new Music TV site, where you can WATCH, CREATE and SHARE music video playlists. Discover your favourite music videos. Browse through thousands of channels or videos and watch music video… Continue

Added by Walter Baxter FMA on March 26, 2009 at 11:00am — 2 Comments

Heart Ball

My wife Patti and I were very excited to attend the Philadelphia Heart Ball. The evenings events raised over one million dollars for programs to support the American Heart Association. Their mission is building healthier lives, free of cardiovascular disease and stroke. We had a great time and really enjoyed the evenings festivities. I'm working on getting a few photos posted soon. Ron Continue

Added by Ron Gardner on March 23, 2009 at 5:09pm — No Comments